13 Jan '17, 9pm
#NORD member @aamdsif has finalized merger w/ the PNH Foundation. Learn more abt this exciting news here:
This month, AAMDSIF finalized its merger with the PNH Research and Support Foundation that we first announced to you on Nov. 1. When nonprofit allies share a long history of successful engagement for the same cause, it stands to reason that they’ll get married someday. After years of close collaboration, it was clear to both organizations that by joining forces, we will become stronger together – as well as more efficient and effective in the services and support we provide to our patients and families. In much the same way that each of you are stronger by virtue of being members of our community, we want to enhance our ability to better meet your needs. We believe it’s essential to stress that the vast majority of what the unified foundation will do for PNH patients will remain the same. An important component that we intend to update and more fully develop is the PNH Onl...