10 Aug '16, 8pm

Proud 2b instructor 4 this @aamdsif training to educate patients on how to become more involved in clinical trials

“PACCT stands for Patient Advisory Committee on Clinical Trials, and the + sign in the abbreviation indicates health services research, a distinct and additional part of the program. Last year, PCORI (Patient Centered Outcomes Research Institute) funded our PAACT+ proposals. It has been focused on improving patient-centered research in all areas of medicine including clinical trials and also making sure that things that patients are genuinely interested in and concerned about make it into the research process. Our PAACT+ program began late last year by building a committee of three patients, each having either aplastic anemia , MDS or PNH, a clinical researcher and a pharmaceutical industry rep. The committee meets on a monthly basis to plan an upcoming training seminar for the eventual full committee. We have just finished recruiting 20 patients who will serve on the PAAC...

Full article: http://www.aamds.org/interview/advancing-clinical-trials-...

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