24 Jul '16, 3pm
MDS Follows Two Misdiagnoses:
I am 76 years old and have had MDS for 13 years. I have the 5q deletion and am classified as relatively low risk. I have been treated with erythropoietin (Procrit®), G-CSF, (Neupogen®), azacitidine , (Vidaza®) and deferoxamine (Desferal®). My hemoglobin ranges from 9.2 to 7.2. I have had 4 transfusions so far this year which is more than usual for me and my last azacitidine (Vidaza®) treatment in June didn't seem to have much benefit. I live in Colorado at 8600 feet elevation, and it is difficult to take walks or hikes like I used to, because of the lack of oxygen. We are planning to move next year to Denver or Fort Collins where the elevation is closer to 5000 feet. In the summer of 2002, before I was diagnosed, one night when I got up, I fell on the floor for no apparent reason. At that time I was working in commercial real estate, which I did for 27 years before retirin...