10 Apr '16, 3pm
It's #NationalVolunteerWeek! Thank you to Mary Swift and all our other fantastic Walk Volunteers:
Support & Community » Stories of Hope My Story - Mary Swift At the age of 3, I became ill with a rare blood disorder. I was bruising easily, and my platelet count was dangerously low. I was diagnosed to have ITP, had my spleen removed, and thought I was cured. However, my disease was either dormant or morphing into something else. My symptoms recurred with each pregnancy and was never dormant again. In 1993, my wonderful doctor, said that whatever I had looked halfway like aplastic anemia AND halfway like myelodysplastic syndrome. He said that I was lucky to have neither, since, in 1993, they were both fatal. Through his attentive care, I was luckily stabilized for almost 25 years on danocrine. But two years ago, my disease progressed and I was diagnosed with severe aplastic anemia. After an unsuccessful 6-month ATG (horse) therapy with Eltrombopag clinical trial , a perfe...