13 Mar '16, 3pm

Looking for peer support for your #bonemarrow failure disease? Check out Marrowforums, a network just for you:

Thanks to the Internet, patients can get advice directly from other patients with the same diseases. For bone marrow failure diseases, Marrowforums is a site where you can do just that. Marrowforums was founded and is administered by former AA&MDSIF Board member and bone marrow failure disease survivor, Ruth Cuadra and her husband Neil. They have created this free online forum where aplastic anemia , MDS, and PNH patients, caregivers, and family members can find each other, make personal connections, and trade information and support. Marrowforums is a place to find your peers: the people who had the same shock of diagnosis, who were as confused as you about a disease they had never heard of, who had to learn all of the medical jargon, who underwent the same treatments, who made the same lifestyle changes, and who have similar hopes and fears. What can patients do for each...

Full article: http://aamds.org/support-and-community/marrowforums

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