17 Sep '15, 3pm

now knew that I was strong." -Carolyn Kesterman #PNHAwarenessWk

now knew that I was strong." -Carolyn Kesterman #PNHAwarenessWk

When Carolyn was told in May 2014 that she had PNH, she actually smiled at hearing the diagnosis. She was relieved that she had a disease that could be treated with a medication, eculizumab (Soliris®). She says, “I now knew I that I was strong.” For several months, she had been struggling with fatigue and had difficulty breathing. As a principal ballet dancer with the traveling Cincinnati Kinderballet for six years, she suddenly had difficulty during rehearsals and performances. She became self-critical and faced pressure and judgement from others. She chalked her fatigue up to stress. Carolyn was also a senior in high school who wanted to maintain her A average and she was having difficulty concentrating. Carolyn finally asked her father to make a doctor’s appointment when she nearly collapsed while biking in gym class. Her diagnosis validated that her struggles were beyo...

Full article: http://www.aamds.org/2015-scholarships-awarded-special-gr...

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