30 Jul '14, 4am

Resources for parents of children w/aplastic anemia, PNH, myelodysplastic syndrome:

Is your child recently diagnosed? Learn tips for taking control or your child's care and getting the support you need. Watch the Bone Marrow Garden with your child and share with friends and family members who want to know more about your child’s bone marrow failure disease. If your child will be out of school frequently, feel free to share the link and children’s activity pages with your child’s teachers so they can help classmates learn more about your child’s disease. Issues for Parents of Pediatric Bone Marrow Failure Patients Learn from an expert. Dr. David Margolis, a pediatric hematologist and aplastic anemia expert, answers all the questions parents want to know about bone marrow transplants, immune suppressive therapy, side effects, school, sports, getting vaccinations, and much more. Read the transcript and watch the video. Listen to Dr. Kenneth Cooke, Director o...

Full article: http://www.aamds.org/patients/parents

Tweets

Resources for Parents with children with #Aplas...

aamds.org 29 Jul '14, 12pm

The Peer Support Network consists of a national network of volunteers, including patients, caregivers, and family members,...

#Aplastic #Anemia guides in various languages n...

aamds.org 04 Aug '14, 3am

Information available includes patient guides for aplastic anemia, myelodysplastic syndromes (MDS), and paroxysmal nocturn...

#Parents and #Teachers: Three Steps to Bring the Best out in Children:

#Parents and #Teachers: Three Steps to Bring th...

ibloom.co 27 Jul '14, 10pm

Parents and teachers are charged with the responsibility to bring out the best in children. When we do, they thrive. They ...

Connect with patients & families in your own town:

aamds.org 01 Aug '14, 9pm

To connect patients and families with each other to provide a local resource for peer support, information exchange, and e...

With the CSTD Asia Pac Dance Competition and November exams coming up, parent Laura Wee wondered how she could...

With the CSTD Asia Pac Dance Competition and No...

swingapore.com 01 Aug '14, 2am

Your child may be feeling excited, nervous, prepared, anxious, or a mixture of all of these emotions. In my experience, pa...

Registration is now open for the annual Walk fo...

aamds.org 30 Jul '14, 3pm

The Walk for PNH is the nation’s largest event dedicated to raising money to help people with paroxysmal nocturnal hemoglo...