27 Mar '14, 7pm

Aplastic anemia survivor and volunteer from Los Angeles takes comfort in helping other patients

Aplastic anemia survivor and volunteer from Los Angeles takes comfort in helping other patients

After several trips to the doctor, I was diagnosed with aplastic anemia in December 2002 (age 62) and received ATG treatment in January 2003. It has been a long road from diagnosis through treatment. I have been transfusion and medication-free since late 2004 and am currently in remission. I have learned to understand aplastic anemia, aka "Annoying Alice", a nickname I have given the disease because that's how I balance my life. "Annoying Alice" does not have a schedule or specific moment when fatigue sets in. When I do become out of sorts or tired, I take the time to rest, and continue to resume daily living. I continue to enjoy what each day brings and keep a sense of humor at my side. Sometimes the mind and body are not in sync, but I continue to live in the moment. Aplastic anemia is my disease but it does not define me. As an AA&MDSIF Support Connection volunteer, I r...

Full article: http://www.aamds.org/patient-chronicles/leticia-abracia

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