14 Mar '14, 3pm

Norma Good’s Life as an MDS Survivor: From Diagnosis to Remission More:

Norma Good’s Life as an MDS Survivor: From Diagnosis to Remission More:

In 1989, all three of Norma Good’s blood counts were found to be abnormally low. The hematologist in her home town admitted to not knowing how to handle her rare bone marrow failure condition, so he referred to her to a local clinic which didn’t offer much hope for survival. Not easily deterred, Norma sought out a clinical trial at the National Institutes of Health (NIH) in Bethesda, Maryland. “The NIH is wonderful,” she says. “They’re doing their best to combat these diseases, and they’re making improvements all the time. We need to encourage people to realize how much better things are now.” Norma’s initial diagnosis had been aplastic anemia , but 18 months later, her diagnosis was changed to MDS . She searched for information about her extremely rare condition. AA&MDSIF was a relatively new organization in the 1980s, but it provided her with support. “The people at AA&M...

Full article: http://www.aamds.org/patient-chronicles/norma-good

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