21 Aug '17, 1pm

Shauna McMillan remakes her life after the challenging diagnosis of MDS (Myelodysplastic syndromes)

Shauna McMillan remakes her life after the challenging diagnosis of MDS (Myelodysplastic syndromes)

I tell people I'm unique - almost one of a kind. I am 40 years old and have recently been diagnosed with a rare type of MDS having an unusual deletion 12q cytogenetic abnormality, known MDS 12q (-), or MDS 12q minus. I was diagnosed in February of 2015 at age 38, however my health struggles began several years before that. I had been living in Alaska for nearly twenty-five years. In 2008, I was diagnosed with lymphocytic colitis (also a rare disease for someone of my age). I was referred to a hematologist for the first of many visits because of low blood counts. After multiple visits and many tests, no cause was identified. In January of 2014, I began having issues with my gallbladder. One night I went to the emergency room. There, a CBC was ordered along with many other tests and to the amazement of the ER staff, it showed a hemoglobin of 4.3. Before I could leave the ER,...

Full article: http://www.aamds.org/patient-chronicles/shauna-mcmillan

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