#5

Aplastic Anemia & MDS International Foundation | answers. support ...

Resource for patient assistance and emotional support; includes educational materials, medical information, and research.

Link: aamds.org

  • Paroxysmal Nocturnal Hemoglobinuria (PNH) | Aplastic Anemia and

    aamds.org 18 Sep '16, 3pm

    Paroxysmal nocturnal hemoglobinuria (PNH ) is a rare blood disease that causes red blood cells to break apart. Doctors call this breaking apart "hemolysis ." It happens because the surface of a person’s blood cells are missing a protein that protects them from the body's immune system...

  • Support Networks | Aplastic Anemia and

    aamds.org 09 Sep '16, 3pm

    Speak with a Peer Support Network Volunteer (previously Support Connection) Bone marrow failure diseases are rare, so it is often difficult to meet others who are dealing with issues similar to your own. But you are not alone! We can help by putting you in touch with other patients an...

  • and

    aamds.org 04 Sep '16, 3pm

    Blood consists of blood cells floating in plasma . Plasma is mostly made of water. It also includes salts, proteins, hormones, minerals, vitamins and other nutrients and chemicals your body needs. What are the 3 Basic Types of Blood Cells? Red blood cells (RBCs) are also called erythr...

  • Advancing Clinical Trials through Expanded Patient Input | Aplastic Anemia and

    aamds.org 10 Aug '16, 8pm

    “PACCT stands for Patient Advisory Committee on Clinical Trials, and the + sign in the abbreviation indicates health services research, a distinct and additional part of the program. Last year, PCORI (Patient Centered Outcomes Research Institute) funded our PAACT+ proposals. It has be...

  • "AA&MDSIF really helped my family and me through a tough a critical time in our lives"

    Patient Inspires Workplace Giving | Aplastic Anemia and

    aamds.org 07 Aug '16, 3pm

    I was just past my 19th birthday when my family and I realized that something was severely wrong with my health. Throughout high school I was always fatigued, and bruised very easily. I also experienced what I now know as petechiae – little red dots all over my body caused by bleeding...

  • Caring for the Caregiver | Aplastic Anemia and

    aamds.org 30 Jun '16, 3pm

    Don’t deny or ignore the fact that being a caregiver will have an effect on you. The stress of caregiving can have a similar impact on the caregiver. “Be aware that being a committed caregiver carries with it physical and emotional health risks. There’s significant data that tells us ...

  • “The doctor told me that he’d never heard of anybody excited to get a bone marrow transplant.” https://t.co/frhgKZYwZ1

    Bryce Harding Moves Past Aplastic Anemia | Aplastic Anemia and

    aamds.org 13 Jul '16, 3pm

    Diagnosed with aplastic anemia in 2012, Bryce Harding is back on track with life. In 2012, Bryce was working in a silver refinery. Friends had been telling him for months that he didn’t look well, but he resisted making an appointment with the doctor. After nearly passing out at work ...

  • Community Events | Aplastic Anemia and

    aamds.org 16 Jun '16, 3pm

    Formerly known as Communities of Hope, these groups are a valuable source of local peer-to-peer engagement, connecting patients and families with each other for mutual compassionate support. March for Marrow Walks Local organizers hold walks large and small in communities of all sizes...

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