Aplastic Anemia & MDS International Foundation | answers. support ...

Resource for patient assistance and emotional support; includes educational materials, medical information, and research.

Link: aamds.org

  • Register now for for March for Marrow Walk in Williamsburg to benefit @aamdsif:

    Williamsburg March for Marrow Walk | Aplastic Anemia and

    aamds.org 21 Oct '16, 7pm

    Get involved and give back by joining the 2nd Annual Williamsburg March for Marrow Walk! Register now! The event will be held on Saturday, October 29 at Sentara Williamsburg Regional Medical Center. The walk will begin at 10:00 am, with registration/check-in beginning at 9:00 am. The ...

  • Bone Marrow Transplant | Aplastic Anemia and

    aamds.org 18 Oct '16, 3pm

    is for informational purposes only. It is not intended to be comprehensive or to substitute for professional medical advice. Always talk with your doctor or other qualified health provider about your condition and any drug or other treatment you are considering. Make sure you fully un...

  • Resources to Help | Aplastic Anemia and

    aamds.org 16 Oct '16, 3pm

    AgingCare.com is a community of caregivers facing the challenge of caring for an elderly loved one. They offer tips about how to cope when you know your elderly parent is dying soon. Aging with Dignity is a national non-profit organization with a mission to affirm and safeguard the hu...

  • Caring by Patient Type | Aplastic Anemia and

    aamds.org 17 Oct '16, 3pm

    All patients are different and all have unique needs. But there are special circumstances to consider for patients in certain categories, such as children, older adults and veterans. Caregivers should educate themselves on what's most important when helping these patient groups learn ...

  • Causes | Aplastic Anemia and

    aamds.org 13 Oct '16, 3pm

    Acquired aplastic anemia is usually considered an autoimmune disease . Normally, your immune system attacks only foreign substances. When your immune system attacks your own body, you are said to have an autoimmune disease. Other autoimmune diseases include rheumatoid arthritis and lu...

  • Myelodysplastic Syndromes (MDS) | Aplastic Anemia and

    aamds.org 08 Oct '16, 3pm

    MDS happens because the bone marrow cells do not develop into mature blood cells. Instead, these blood cells stay within the bone marrow in an immature state. There are many subtypes of MDS. Some cases are mild, while others are more severe, and carry a high risk of becoming acute mye...

  • Paroxysmal Nocturnal Hemoglobinuria (PNH) | Aplastic Anemia and

    aamds.org 18 Sep '16, 3pm

    Paroxysmal nocturnal hemoglobinuria (PNH ) is a rare blood disease that causes red blood cells to break apart. Doctors call this breaking apart "hemolysis ." It happens because the surface of a person’s blood cells are missing a protein that protects them from the body's immune system...

  • Read about Joe Ellenberger's inspirational battle against PNH:

    Fighting PNH While Helping the PNH Community | Aplastic Anemia and

    aamds.org 27 Sep '16, 3pm

    For people who have recently learned they have PNH – I encourage them to try and do what I did. Get a specialist, and learn to be your own best advocate and speak up when you need something. Don’t let this medical challenge completely take over your life – things are going to be diffe...


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