Aplastic Anemia & MDS International Foundation | answers. support ...

Resource for patient assistance and emotional support; includes educational materials, medical information, and research.

Link: aamds.org

  • MDS Follows Two Misdiagnoses:

    Follows Two Misdiagnoses | Aplastic Anemia and

    aamds.org 24 Jul '16, 3pm

    I am 76 years old and have had MDS for 13 years. I have the 5q deletion and am classified as relatively low risk. I have been treated with erythropoietin (Procrit®), G-CSF, (Neupogen®), azacitidine , (Vidaza®) and deferoxamine (Desferal®). My hemoglobin ranges from 9.2 to 7.2. I have ...

  • “The doctor told me that he’d never heard of anybody excited to get a bone marrow transplant.” https://t.co/frhgKZYwZ1

    Bryce Harding Moves Past Aplastic Anemia | Aplastic Anemia and

    aamds.org 13 Jul '16, 3pm

    Diagnosed with aplastic anemia in 2012, Bryce Harding is back on track with life. In 2012, Bryce was working in a silver refinery. Friends had been telling him for months that he didn’t look well, but he resisted making an appointment with the doctor. After nearly passing out at work ...

  • Caring for the Caregiver | Aplastic Anemia and

    aamds.org 30 Jun '16, 3pm

    Don’t deny or ignore the fact that being a caregiver will have an effect on you. The stress of caregiving can have a similar impact on the caregiver. “Be aware that being a committed caregiver carries with it physical and emotional health risks. There’s significant data that tells us ...

  • Grant Recipients | Aplastic Anemia and

    aamds.org 10 Jul '16, 12am

    Bone marrow failure syndromes are not only serious and debilitating diseases but they can also progress toward leukemia. Identifying the specific factors contributing into this malignant transition is extremely important. Our group focus in past few years has been the role of the immu...

  • Caring for Yourself | Aplastic Anemia and

    aamds.org 26 Jun '16, 3pm

    Taking care of your body, mind and spirit while living with bone marrow failure disease covers a lot of seemingly unrelated areas, but to ensure the quality of everyday living, you will want to pay attention to all of them. Some topics cover physical health and some cover emotional he...

  • Community Events | Aplastic Anemia and

    aamds.org 16 Jun '16, 3pm

    Formerly known as Communities of Hope, these groups are a valuable source of local peer-to-peer engagement, connecting patients and families with each other for mutual compassionate support. March for Marrow Walks Local organizers hold walks large and small in communities of all sizes...

  • Exercise | Aplastic Anemia and

    aamds.org 02 Jun '16, 3pm

    If your white blood cell counts are low or if you are taking meds that may impair your immune system avoid public gyms and other public places. Do not exercise if you have anemia . Do not exercise if the levels of minerals in your blood are not normal. This can occur if you have diarr...

  • Caregiving Advice | Aplastic Anemia and

    aamds.org 07 Jun '16, 3pm

    Is it true to say that many people don’t realize that they are caregivers? Yes, many say things like, “I’m not a caregiver; I’m his wife” or “After all that my mother has done for me, I’m just giving something back.” Most people who engage in caring for a family member, friend or neig...


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