11 Jul '17, 6pm

Really cool to be part of this group to facilitate patient participation in clinical trials with @aamdsif & @PCORI

On June 17, the AAMDSIF Patient Advisory Council on Clinical Trials (PACCT+) members met in Arlington, Virginia for the second orientation seminar, meeting fellow committee members and learning from two experts about clinical trial design and the state of current MDS research. By their selection and participation, PACCT+ participants are expected to become familiar with clinical science research to ensure their ability to provide informed feedback that would benefit a study’s design and impact. PACCT+ is a two-year demonstration project to develop and test a program to train patients in basic clinical and health services research concepts. This initiative is funded by the Patient Centered Outcomes Research Institute (PCORI) through AAMDSIF’s PCORI Engagement Award. Greg Martin, Deputy Director of Stakeholder Engagement with the Patient Centered Outcomes Research Institute ...

Full article: http://www.aamds.org/article/pacct-patient-group-meets-an...

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You make patient support possible. Thank you!

aamds.org 18 Jul '17, 12pm

Please be aware that the AAMDSIF HelpLine is an information and referral line and is not staffed by clinical professionals...

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embedded-computing.com 09 Jul '17, 4pm

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Former Aplastic Anemia patient is a Marathoner!

aamds.org 08 Jul '17, 2pm

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Vincent has an amazing story:

Vincent has an amazing story:

aamds.org 17 Jul '17, 1pm

“They thought it was because I had no iron, that I was iron deficient.” The extensive blood work that followed told a diff...