08 Jul '17, 2pm

Former Aplastic Anemia patient is a Marathoner!

Former Aplastic Anemia patient is a Marathoner!

Recovered Aplastic Anemia Patient Connects with Community Development and Professional Running I grew up in the Boston area, and it has been almost exactly 20 years since my diagnosis. I was diagnosed as a 6-year-old in January, 1997, at which point I was taken out of school for treatment. The problem first showed up as what my parents figured was a rash, but were actually petechiae . Upon further testing, my CBC revealed significantly abnormal results; after being referred on and diagnosed with aplastic anemia at Massachusetts General Hospital, there followed a 9 month period of treatment and recovery. The doctors couldn’t find a match for a bone marrow transplant , so I received the standard treatment of ATG and cyclosporine . After a few months, my blood counts rose and they were close to normal by May. By the fall of 1997, I was back in school, but continued with follo...

Full article: http://www.aamds.org/patient-chronicles/tyler-andrews

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aamds.org 18 Jul '17, 12pm

Please be aware that the AAMDSIF HelpLine is an information and referral line and is not staffed by clinical professionals...

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aamds.org 11 Jul '17, 6pm

On June 17, the AAMDSIF Patient Advisory Council on Clinical Trials (PACCT+) members met in Arlington, Virginia for the se...

Vincent has an amazing story:

Vincent has an amazing story:

aamds.org 17 Jul '17, 1pm

“They thought it was because I had no iron, that I was iron deficient.” The extensive blood work that followed told a diff...