31 Jul '16, 3pm

Biology Teacher Battles PNH:

Biology Teacher Battles PNH:

Steve Coffin considers himself lucky. Diagnosed with PNH in 2015, he is grateful that he has responded well to eculizumab (Soliris®) treatment. “I’m incredibly fortunate,” he said. “It’s doing exactly what it’s supposed to do.” Steve, a 34-year-old avid runner, always lived an active lifestyle, but he had also sometimes experienced unexplained issues with fatigue over the years. In February, after a bout with the flu, he woke up at four in the morning with severe abdominal pains. “Within three or four breaths, I knew I had to get to the hospital,” he states. The hospital ran test after test, but it wasn’t until a couple of months later, that he was finally diagnosed. In early June, Steve received his first treatment at the Dana-Farber Cancer Institute in Boston. He vividly remembers the experience because his second daughter had just been born. One minute, he was holding h...

Full article: http://www.aamds.org/patient-chronicles/steven-coffin


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