22 Nov '15, 4pm

Part of beating a rare disease is learning how to advocate for yourself. Learn how here: https://t.co/FXVoXJqIzZ

Self-Advocacy for Patients with Bone Marrow Failure Diseases What is Standing Up for Your Health? Standing Up For Your Health means being a strong self-advocate and an empowered patient. It means taking a more active role in your care to ensure you or your loved one receive the best care and treatment available. Standing Up For Your Health is also a program created to help people with bone marrow failure diseases and their families develop the skills necessary to ensure they receive high quality care. It includes an integrated set of tools, learning experiences, materials and resources for you to examine, evaluate, and engage with, all with the goal of helping you become a more effective advocate for your own healthcare and a more powerful patient. The Five Principles of Standing Up for Your Health highlight what empowered patients and strong self-advocates do that leads t...

Full article: http://aamds.org/support-and-community/standing-up

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#Climate change in Europe is already affecting public #health. #EEASignals interview: https://t.co/KEb2GcXRGX #COP21 htt…

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In need of Holiday shopping ideas? Shop our MDSF store!!

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mds-foundation.org 23 Nov '15, 3pm

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Rare vintage Rolex collection in Florence. By @watchesinrome. https://t.co/DQ8N5946rF https://t.co/DMfvqNTrbr

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watch-anish.com 22 Nov '15, 8pm

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Sea Shepherd Served With Summons After Standing Up for the Pilot Whales in Danish Parliament https://t.co/eWvh6SO5Qs h…

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seashepherd.org 22 Nov '15, 2am

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mnn.com 22 Nov '15, 2am

In previous eras, most of the world's major cities had a trait that few retain today: a fortified wall. Once necessary for...

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inhabitat.com 22 Nov '15, 5am

Did you know that 70% of the oxygen we breathe is produced by marine plants? While the deep blue sea may seem mysterious a...