20 Sep '15, 3pm

"I refuse to let this disease run my life." #PNHAwarenessWk

Along the way, I found the Aplastic Anemia & MDS International Foundation, and its message of answers, support, and hope. I have found all of that and more, and I have found fellowship there. My journey through the world of bone marrow failure has been rocky, and sometimes scary, but the foundation focuses on making it all a little less scary, a lot more comprehensible, and far more hopeful. Over the last eight years, I’ve attended at least five patient conferences that have offered invaluable information and support, because I always learn something new when I attend. It helped immensely going to patient conferences, and meeting people like me, because you do feel so alone. I’ve also availed myself of the live and archived webinars, and found useful information there, too. I’ve realized over the years that sometimes you need to lean on the people who love you, and sometim...

Full article: http://www.aamds.org/patient-chronicles/gloria-winter

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