09 Sep '15, 4pm

PNH Awareness Week is September 14-20, 2015! AAMDS has great ideas to bring awareness to PNH:

Are you or a loved one affected by PNH (paroxysmal nocturnal hemoglobinuria )? PNH Awareness Week is September 14 - 20, 2015! Help us raise awareness in your community by giving a few hours of your time. We need your help to make an impact during this special week devoted to raising awareness in communities across the country about PNH, how to get help, and what AA&MDSIF can do to support patients and families. You can make a difference! It can be as easy as volunteering at a bone marrow drive, sponsoring a dress down day at the office, or organizing an awareness/fundraising event at a local restaurant. A great way to make a difference is to participate in the Walk for PNH 2015! Register to walk with family and friends for the September 20, 2015 walk in Riverside Park in New York City! Can't make it to the walk? Register as a virtual walker - and you can still participate ...

Full article: http://www.aamds.org/node/2101

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