10 Apr '15, 3pm

Consider taking this survey about aplastic anemia, MDS, and PNH fatigue to improve patient services:

INFORMED CONSENT/AUTHORIZATION FOR PARTICIPATION IN RESEARCH Subtitle : Fatigue, Symptom Burden and Health-Related Quality of Life Consent Statement Study Chair: Carmen Escalante The goal of this research study is to learn about fatigue and other symptoms in patients with have myelodysplastic syndrome (MDS ), aplastic anemia (AA), or paroxysmal nocturnal hemoglobinuria (PNH ) in order to improve patient services and programs. If you agree to take part in this study, you will complete an online questionnaire packet about your medical history and about any symptoms you may be having, such as pain, fatigue, depression, and anxiety. The questionnaires should take about 15-30 minutes to complete. Up to 1,000 participants will be enrolled in this study. Your participation on this study will be over after you complete the questionnaire. During this study, the research team at AA&...

Full article: http://www.aamds.org/node/3145

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aamds.org 09 Apr '15, 3pm

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